Sunday, November 21, 2010

November 21 - Day 4 continued




Chloe and Tommy had a long night.  They had to change some lines in Chloe's arm, which took a really long time.  They also had to do some chest x-rays.  She did not get a lot of rest.  As of yesterday Chloe's eyes were swollen shut, and her swelling I think reached its maximum.  When I saw her this morning, her left eye was open a little bit.  Her fever keeps reappearing.  They will do another culture soon, so far they have all come back negative.  Fevers are common after surgery.  They are still hoping to take out the breathing tube on Monday.  If everything goes OK, she'll come home Thursday or Friday.

I've been asked about Chloe's future surgeries.  The way I understand it is this will be the biggest surgery.  We'll let her heal and decide with her doctors and with her input when her next surgery will be.  I know we were hoping to have a few before she started high school which is less than 2 1/2 years away to fine tune her eyes, lip, and nose.  After this surgery we will assess her jaw and mouth as well.  We will definitely keep you posted.

Katie is doing really well.  She had a great soccer game.  She will cry at times and is very concerned about her sister.  She is good at communicating and talking about her feelings.  She loves hanging with friends and family.  She stayed with my parents, and then played with her cousins Macenzie and Cody at her Grandma Greep's house.  Tessa slept with me Thurs. and Fri.  She went over to play with her favorite cousin JT and spent the night with them.  Tessa is having a hard time communicating her feelings.  She is very clingy to me, which is normal.  She is still a baby.  Peter and Jenny Raulli are going to take them for a playdate with their 4 kids - Audrey, Hillary (our God Child), Charlotte, and Luke.  They are extremely excited.  Thanks to all of you for helping out with them.


10 comments:

  1. Chloe,
    I will keep praying for you. I hope you get better soon.

    Hugs!
    Emma

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  2. Hi Dancer Girl,

    You have a very stubborn Grandpa! He is determined to stay with you tonight, no matter what. We'll see who wins this battle -- your Mom or Grandpa. I most likely will not visit you, because you need your rest. Tomorrow is a very BIG day for you. Praying your tube will come out, and that you will finally be able to communicate. Chloe, I love your friends. They are so caring, generous and loyal. I am so very proud of your Mom and Dad. They are focused and determined. Nicole always has a smile on her face, just so that I won't get upset. Tommy is always the optimist -- Grandpa needs lessons! Love you both for making our lives so complete! Grandma S
    P.S. I'm praying that your fever goes away.

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  3. I hope that you will get better and be able to do more things soon. You are being so brave through this tough time. I will keep praying for you.

    Love,
    Cameron

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  4. Chloe,
    I have been praying for you everyday and night and I pray that you heal fast and get better soon so that we can all see you again. You are such a brave girl! Miss you so much! Love you to death!
    Love Your Entrada Sister,
    Miranda

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  5. Chloe,
    Hope today and every day hereafter get easier and easier. Lots of prayers are headed your way. Sounds like your Grandpa is going to stay by your side tonight. I am not surprised. He is pretty determined especially when it comes to how much he treasures you and your amazing family! If he does and misses a night's sleep, your Mom or Grandmom needs to let us know and we will lock his office door tomorrow a.m. and send him home! Praying for an easy and peaceful night for you!

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  6. I miss you Chloe...I hope you feel better really soon. I am thinking about you and praying for you, Love,
    Bre :)

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  7. Hope you are feling better. I feel so bad for the pain you're in. PLEASE GET BETTER SOON- I MISS YOU SOOOOO MUCH!!!!!!!!!!!!!!!!!!!!
    I'll continue to pray for you.

    love,
    makenzie

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  8. Chloe,
    I'm praying that each day gets better and better. Hang in there. I can't believe how strong you are. You are an inspiration to us all!

    Hugs from the Sallinger Family

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  9. Dear Chloe we said prayers for you at church today. We know you are strong and will continue to get better. Keep smiling you will be home soon. Kaitlyn says to hang in there and get well soon.
    Love and Blessings, Kaitlyn, Debbie, John and Amanda Terzino

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  10. Dear Chloebear,

    Just got off the phone with your Mom. You had a pretty good day today. Your eyes aren't as swollen, but your neck has gotten biggger. Hope the swelling goes down tonight. Your friends are anxious to see you, but they and you will have to be patient. We don't want an infection! I spent all day thinking about you. I miss not doing your hair. I love it when you ask me to do your hair in braids. You have the most beautiful hair, and the softest skin. I was telling Katie that I love holding your hands, because they're so soft and pillowy. I can't believe that you've gone this long without food. When you're out of sedation, you won't believe it either. We know how much you enjoy your food. Mom and Dad are well cared for. Helen made soup the other day, and today Jenny gave your Mom split pea soup. Katie and Tessa had fun playing there today. I'm posting all these comments, because you'll want to know everything that you missed while you were under. I love you very much and miss you sooooo
    much! Sleep tight Chloebear.
    Hugs and kisses, Grandma S.

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